Support programs for people with dementia and caregivers
The resources listed below have been identified by the NC Registry for Brain Health as potentially helpful to our registrants and community. The NC Registry for Brain Health does not maintain these resources. Please discuss any medical decisions with your doctor or care provider.
Alzheimer’s Association
Alzheimer’s Association 24/7 Helpline
800-272-3900
Alzheimers.gov
A federal government website that contains a wide range information, resources, and support for people with Alzheimer’s disease and related dementias, their caregivers, and their families.
Center for Outreach in Alzheimer's, Aging and Community Health (COAACH)
A center dedicated to enhancing the quality of life for African Americans and vulnerable communities living with Alzheimer’s and related dementias, their families and caregivers through education and community support.
https://www.ncat.edu/research/centers/coaach/index.php
Dementia Alliance of North Carolina
Offers compassionate support and assistance to those who are living with or caring for individuals with all stages and types of dementia.
Duke Dementia Family Support Program
DDFSP offers education, support, and engagement to people living with dementia and their families. Services are provided free of charge and no affiliation with Duke Health is needed.
https://dukefamilysupport.org/
Eldercare Locator
Nationwide service that connects older Americans and their caregivers with trustworthy local support resources.
https://eldercare.acl.gov/Public/Index.aspx
Family Caregiver Alliance National Center on Caregiving
The NCC serves as a central source of information on caregiving and long-term care issues for policy makers, service providers, media, funders, and family caregivers throughout the country.
https://www.caregiver.org/national-center-caregiving
MemoryCare
Independent, community-based, charitable organization serving adults with cognitive impairment and their families using a model that integrates education and support of caregivers with medical care of those with dementia. In-person services are available in the western North Carolina region, but education and support is available virtually to all.
https://memorycare.org/news-events/
NC Division of Aging and Adult Services
Information about state programs for older adults – click links for “Alzheimer’s” and “Family Caregiver Support.”
https://www.ncdhhs.gov/divisions/daas
Project CARE
State-funded, dementia specific support program for individuals who directly care for loved ones with Alzheimer’s disease or related dementias.
https://www.ncdhhs.gov/assistance/adult-services/project-care
VA Caregiver Support
In home and out-of-home programs for care partners of veterans.
Information about Alzheimer’s disease, other dementias, and brain health
Alzheimer’s Association Brain Health Information
https://www.alz.org/help-support/brain_health
Alzheimer’s Los Angeles
Clear, concise caregiver information and tips in English, Spanish, Chinese and Japanese.
American Association of Retired Persons (AARP)
Information about dementias and caregiver resources.
https://www.aarp.org/health/dementia/
AARP’s Global Council on Brain Health
Translates critical scientific research into brief and easy-to-understand materials about brain health and simple steps one can take to improve it.
https://www.aarp.org/health/brain-health/global-council-on-brain-health/resource-library/
Association for Frontotemporal Degeneration
Information about diagnoses, navigating health care, caregiving challenges, planning for the future, and finding support for the most common type of dementia in those younger than 60.
Caregiver Information and Support
Information from the University of California San Francisco.
https://memory.ucsf.edu/caregiving-support
Cleveland Clinic Healthy Brains
Six pillars of brain health: lifestyle changes that can have an impact on your brain health.
https://healthybrains.org/pillars/
Lewy Body Dementia Association
Supporting those affected by Lewy body dementias, their families, and caregivers through outreach, education, and research.
National Institute on Aging
Information about Alzheimer’s Disease and related dementias, news, tips, and resources for caregivers and health care professionals.
https://www.nia.nih.gov/health/alzheimers/caregiving
National Stroke Association – Vascular Dementia
Information about vascular dementia – what it is, treatments, and tips on managing the diagnoses and caring for someone living with the disease.
University of California San Francisco Memory and Aging Center
Information about types of dementia, their causes, disease processes, and treatments.
https://memory.ucsf.edu/what-dementia