Warm Season’s Greetings from the NC Registry!

The NC Registry has a lot to be thankful for this year, and we are most grateful for the registry participants who support this important work to improve brain health. As 2023 comes to an end, we are celebrating these highlights:

  • The Registry grew to include over 11,500 members.
  • Our dedicated registry team connected with diverse communities – sharing free resources and leading educational talks at 120+ events throughout NC.
  • Our registry participants supported the important discoveries of 13 unique studies on many different areas of brain health. Learn more about our studies.
  • We launched a Spanish homepage.
  • We were honored to share the impact of our state’s talented brain health research teams at the 2023 Alzheimer’s Association International Conference.

Thank you for being part of our community! We wish you and your loved ones health, happiness, and joy in 2024.

 

 

Fall 2023 Newsletter

The NC Registry has a lot to be thankful for this year! Read the Fall 2023 Newsletter to learn about the highlights we’re celebrating. This newsletter also includes information on a variety of topics to support people with memory disorders and their caregivers, including:

  • Tips to reduce stress around the holidays
  • Memory Cafés where people with dementia and their caregivers can socialize with others
  • Online educational and exercise programs

Click here to read the Fall 2023 Newsletter

Summer 2023 Newsletter

In this summer edition of the NC Registry’s newsletter, we are excited to announce that we passed our goal to enroll 10,000 participants by 2023! Our Summer 2023 Newsletter also includes information about:

  • The NC Registry’s work to reach communities that are underrepresented in dementia research
  • Tips for caregivers to learn early signs of dementia and stay connected with loved ones that live far away
  • Results from a recent study that showed where rates of Alzheimer’s disease are higher in the United States
  • Signals in the blood that are linked to a higher risk of dementia and that may appear years before a person has cognitive problems

Being well-informed is the first step to improving brain health.  Click here to read the Summer 2023 Newsletter

 

NC Registry for Brain Health Exceeds Enrollment Goal of 10,000

The NC Registry for Brain Health, funded by the North Carolina Department of Health and Human Services, has reached its goal of enrolling 10,000 participants by 2023! To date, there are more than 11,000 members enrolled who represent a broad range of ages (18+), races, ethnicities, and regions of the state.

Two pie graphs showing registry enrollment statistics. Approximate Age: 70s (3,203), 60s (3,016), 80s (1,530), 50s (1,228), 40s (669), 30s (389), 90s (312), 18-29 (259), 100s (20), No Response (452). Race: Caucasian/White (7,124), African American/Black (3,127), Multi-racial (200), Other (178), American Indian/Alaska Native (112), Asian (142), Native Hawaiian/Other Pacific Islander (4), No Response (192)

Why is this important?

The number of North Carolinians affected by Alzheimer’s disease and related disorders is growing. According to a recent Alzheimer’s Association report, 180,000 people in North Carolina were living with Alzheimer’s disease in 2020. By 2025, the number is expected to grow to over 210,000 people affected across the state—a 16.7% increase over five years. The NC Registry is working to change this future outlook for dementia by connecting people across the state with resources to prevent and manage memory disorders.

The NC Registry is a valuable and free source of information for participants to learn about ways to promote their individual brain health, lower their risk of dementia, find support for caregivers, and learn about opportunities to participate in research studies supporting brain health. For researchers leading studies in the area of brain health, the NC Registry helps connect potential participants to studies to ensure that the work to promote brain health includes and reflects North Carolina’s diverse communities.

Together, the NC Registry’s participants and researchers are supporting brain health research that could lead to a brighter tomorrow for all of us.