NC Registry for Brain Health Exceeds Enrollment Goal of 10,000

The NC Registry for Brain Health, funded by the North Carolina Department of Health and Human Services, has reached its goal of enrolling 10,000 participants by 2023! To date, there are more than 11,000 members enrolled who represent a broad range of ages (18+), races, ethnicities, and regions of the state.

Two pie graphs showing registry enrollment statistics. Approximate Age: 70s (3,203), 60s (3,016), 80s (1,530), 50s (1,228), 40s (669), 30s (389), 90s (312), 18-29 (259), 100s (20), No Response (452). Race: Caucasian/White (7,124), African American/Black (3,127), Multi-racial (200), Other (178), American Indian/Alaska Native (112), Asian (142), Native Hawaiian/Other Pacific Islander (4), No Response (192)

Why is this important?

The number of North Carolinians affected by Alzheimer’s disease and related disorders is growing. According to a recent Alzheimer’s Association report, 180,000 people in North Carolina were living with Alzheimer’s disease in 2020. By 2025, the number is expected to grow to over 210,000 people affected across the state—a 16.7% increase over five years. The NC Registry is working to change this future outlook for dementia by connecting people across the state with resources to prevent and manage memory disorders.

The NC Registry is a valuable and free source of information for participants to learn about ways to promote their individual brain health, lower their risk of dementia, find support for caregivers, and learn about opportunities to participate in research studies supporting brain health. For researchers leading studies in the area of brain health, the NC Registry helps connect potential participants to studies to ensure that the work to promote brain health includes and reflects North Carolina’s diverse communities.

Together, the NC Registry’s participants and researchers are supporting brain health research that could lead to a brighter tomorrow for all of us.

 

 

Spring 2023 Newsletter

Read the Spring 2023 Newsletter to learn about the importance of exercise for brain health. You will also find information about ways to safely add physical activity to your daily routine, resources for caregivers, and information about Alzheimer’s therapies of the future. Learn more by clicking the link below.

NCRBH Spring 2023 Newsletter

NC Registry for Brain Health Spring 2023 Newsletter

Pace of Aging May Help Predict Risk of Dementia

Researchers have found that some people age slowly, only experiencing a few months’ worth of physical aging in a year, while others age more quickly, in effect, growing years older in just one calendar year. This may help explain why one 50-year-old might appear to be in their 30s while another seems closer to 70. This pace of aging is referred to as biological age which is different than chronological age or number of years a person has been alive.

Duke scientists recently discovered that the pace of aging may also serve as a powerful predictor of an individual’s risk of developing Alzheimer’s disease or other cognitive decline. Read more here

 

Increased Financial Generosity Linked to Lower Cognition

A recent study funded by the National Institute on Aging and conducted at several sites across the U.S. found that increased altruism or willingness to give away money (such as charitable donations) is associated with decreased cognitive function and may be an early indicator of Alzheimer’s disease. Limitations of the study point to the need for further research. Read more here.

 

NIA Article: Report on New Treatment Option Shown to Reduce Cognitive Decline in Alzheimer’s Study

In January 2023 U.S. Food and Drug Administration (FDA) approved a new treatment option for Alzheimer’s disease called Leqembi (lecanemab-irmb). The FDA accelerated its approval of the medication citing that the category of medications “represents an important advancement in the ongoing fight to effectively treat Alzheimer’s disease”.

Study results showed that lecanemab produced a clear yet modest clinical benefit for people in the early stages of Alzheimer’s. The medication slowed the rate of cognitive decline over 18 months and reduced the levels of brain amyloid when compared to placebo. Learn more in this article from the NIH National Institute on Aging (NIA).

 

Winter 2023 Newsletter

Read the Winter 2023 Newsletter to learn more about the history and importance of African American participation in clinical research. You will also find articles on the importance of taking care of your five senses, study results showing how bilingualism and music may reduce the risk of dementia, helpful resources, and news about upcoming events. Learn more by clicking the link below. Volume 4, Issue 1: Winter 2023

 

 

Seasons Greetings!

The NC Registry for Brain Health team would like to wish you and your family a joyous holiday season!

 

We are grateful you have chosen to be a part of the Registry. By working together, we can improve brain health and defeat dementia.

Sincerely,
The NC Registry for Brain Health team

 

 

Fall 2022 Newsletter

The Fall 2022 Newsletter commemorates National Alzheimer’s Disease Awareness Month and National Native American Heritage Month. Read about a common surgical complication called delirium, upcoming events, and helpful resources. Learn more by clicking the link below. Volume 3, Issue 4: Fall 2022

NC Registry for Brain Health Fall 2022 Newsletter

Summer 2022 Newsletter

The Summer 2022 Newsletter features updates from the July Alzheimer’s Association International Conference (AAIC), news on recent research studies, upcoming events, and tools you can use. Learn more by clicking the link below.

Volume 3, Issue 3: Summer 2022

NC Registry for Brain Health Summer 2022 Newsletter

Spring 2022 Newsletter

Our Spring 2022 newsletter commemorates Older Americans Month. Learn more about healthy aging and the connection to Alzheimer’s and dementia. Get tips on how to stay healthy as you age, news about upcoming events, and helpful resources. Read more by clicking the link below.

Volume 3, Issue 2: Spring 2022

NC Registry for Brain Health Spring 2022 Newsletter